Resources
Autism Anglia
Autism Anglia is an independent charity that provides care and support to autistic children, adults, and their families in East Anglia. Services in Essex, Suffolk, and Norfolk, managed from offices in Colchester and Dereham, offer personalised approaches that provide each individual with the necessary skills and strategies to enable them to realise their own strengths and abilities. The charity also seeks to promote greater knowledge and understanding of autism through training, education, and supplying information to the public and professionals.
https://www.autism-anglia.org.uk/
For £5 they offer an Autism Alert Card which can be carried by older children and used in an emergency situation. What is an Autism Alert Card? | Autism Anglia (autism-anglia.org.uk)
Asperger East Anglia
Asperger East Anglia offers personal, friendly assistance for everyone with Asperger syndrome and their carers by providing a comprehensive and integrated service. Where there is a gap in provision they aim to work in partnership with other organisations to help fulfil it. They can also provide information on Asperger syndrome to professionals in the education, social care and health sectors.
Autistica
They are the UK’s national autism research charity. They focus on giving autistic people the opportunity to live long, happy, healthy lives. They do this by funding research, shaping policy and working with autistic people to understand their needs.
Research is the best way to improve understanding, find new ways to support people and families, and change lives for the better.
https://www.autistica.org.uk/
Ambitious About Autism
Every autistic child and young person has the right to be themselves and realise their ambitions. They stand with autistic children, young people and their families to champion rights, campaign for change and create opportunities. They started as one school and have become a movement for change. Their services include providing information and practical support and delivering specialist education and employment programmes.
About with Friends
Offers a range of activities and respite opportunities for young people aged 9 years and above living with disabilities in Norfolk.
Activities Unlimited
Activities Unlimited provides short breaks and leisure activities to disabled children aged 0-25 in Suffolk.
Autism & ADHD
Offers support to individuals and families who live and work with Autism and ADHD.
AFASIC
Provides information and training for parents and professionals for children and young people who have Speech Language and Communication needs (SLCN).
The Association for Child and Adolescent Mental Health
Shares information and best practice across the UK through a network of branches.
Autism Central
Autism Central aims to make it easier to learn more about autism and the services available to you.
Autism Education Trust (AET)
The AET helps to develop good autism practices and works in partnership with the Department for Education. Their training programme and education resources are created with a panel of Autistic young experts, parents/carers and a network of training partners, education professionals, experts and specialists.
Autism Independent UK
Autism Independent UK helps to increase awareness of Autism to the notice of all, together with well-established and newly developed approaches in the diagnosis, assessment, education and treatment. The main goal is to improve the quality of life for persons with Autism, giving them a chance to take their rightful place within their local community where they can live, work and play.
Autistic girls network
A small registered charity working to support, educate and bring change.
Avenues
Specialist provider of support services for people with Autism, learning disability and acquired brain injury. (Suffolk)
Calm Cats
Calm Cats helps children to learn the tools and techniques for self regulation, self care and improved emotional and physical wellbeing used Calm Cats signature recipe.
Carers Trust
Offers specialist services for carers of people of all ages and conditions and a range of individually tailored support and group activities.
The Curly Hair Project
The Curly Hair Project (CHP) is an award-winning social enterprise founded by autistic author and entrepreneur Alis Rowe. CHP resources are used by individuals, families and professionals worldwide. All their work is based on personal, real-life examples and experiences.
The resources they have created include are:
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Dial Great Yarmouth
Provides specialist advice and support on all aspects of the benefits system. This includes help to complete claim forms through to support at tribunals. Our knowledgeable staff are able to provide information and advice on a wide range of issues including housing, other support services and much more.
Disability Advice North East Suffolk (DANES)
DANES is a local charity that supports those with a disability or long-term health condition and their carers. They provide information, advice and support with benefits, employment, education, housing and more.
Dimensions
Dimensions is one of the largest not-for-profit organisations supporting people with learning disabilities, autism, behaviours of distress and those with complex health needs.
Early Help (Norfolk)
If you have difficulties in your family, or if you are worried about your children, there are people who can support you. Early help is about giving information, advice and guidance to families. They can help any family with a child or young person up to 18 years old (25 for young people with special educational needs and/or disabilities)
Family Support Suffolk (formally Early Help)
Complete an early help assessment form to access a support plan.
Family Action
Offers support and advice to manage issues such as school, sleep, food and friendships. They also offer parenting programmes and support groups. Referral by an NHS professional is needed.
Family Lives
Provides support to families, they run a confidential helpline, live online chat, email support, online parenting advice videos and an online parenting forum.
Family Voice
Family Voice Norfolk is the parent carer forum for Norfolk. They work with (not for) the local authority, and health and social services to improve services for children and young people with special educational needs and/or disabilities (SEND) and their families.
NB. For families who live outside of Norfolk, most areas have a parent carer network.
The Local Offer
Every local authority must have a local offer where information on provision for children and young people aged 0-25 in the area.
SEND Local Offer - Norfolk County Council
National Autistic Society
They are the UK's leading charity for people on the autism spectrum and their families.
he National Autistic Society website offers a wealth of information, it is well worth signing up to their mailing list and seeing if they have a local support group near you. Some of the things they offer are:
- Information on post-diagnostic support parents and carers (autism.org.uk)
- Online training modules Online training (autism.org.uk)
- Helplines Help and support (autism.org.uk)
- Autism Services Directory Autism Services Directory
- Local branches Branches (autism.org.uk)
- Advice, guidance and support strategies Advice and guidance (autism.org.uk)
The Norfolk & Norwich SEND Association (NANSA)
NANSA is a charity that provides a range of Early Childhood and Family Services.
Norfolk SEND Partnership
Norfolk SENDIASS provide free and impartial information, advice and support about special educational needs and disabilities (SEND) for children, young people, parents and carers.
Norfolk FC Community Sports Foundation
As Norwich City Football Club’s official charity partner, they help thousands of people every year to achieve their goals through sport, supporting some of the most disadvantaged, disabled and talented people across Norfolk. Their vision is to support, inspire and improve our community.
Ormiston families
Supporting smiles emotional wellbeing services, offers professional mental health support to any child or young person, aged 4- 18 living in Norfolk or Waveney or registered with a Norfolk or Waveney GP.
Guidance on referrals Support for Mild to Moderate Mental Health Needs (justonenorfolk.nhs.uk)
The Potato Group
A membership group for adoptive parents of teenagers and beyond.
Scope
The disability and equality charity in England and Wales. They provide practical information and emotional support when it is most needed.
Sensory Integration Education
Provide training for those who work with and care for people with sensory challenges. Includes Sensory Help Now a supportive online community of parents and carers with sensory integration qualified therapists on hand to answer queries and concerns.
SENsational Families
SENsational Families is a charity that provides support services and training for families with special educational needs and/or disabilities (SEND) in Norfolk.
SENsational Families advocates on behalf of parents with SEND children and young people in Norfolk. Striving for positive changes, inclusion and fairness.
Shine Great Yarmouth
For children with additional needs and their families. They provide a nursery and short breaks group activities.
Speech & Language Therapy
Speech and language therapists support children with speech, language and communication needs, to help them communicate better.
Suffolk Parent Carer Forum (SPCF)
SPCF’s aim is to ensure that every parent/carer in Suffolk’s voice, views and experiences matter and that they contribute towards developing and improving services.
Suffolk parenting hub
A single place for Suffolk parents or carers to find parenting advice and support to help their child’s development.
Sunbeams Play
Sunbeams Play provides safe and fun groups for children and young people with autism age 5 up to 25 years.
Tiny Happy People
Helps you develop your child’s communication skills through simple activities and play.
Topcats
Offers support for young people and adults with additional needs from age 5- 30 years in Waveney.
Understanding Autism, Aspergers and ADHD
Issuer: University of Derby
Free short online course designed to help raise awareness and encourage communication and education about these issues in the community and amongst professionals and stakeholders within health and social care settings.
Useful Apps
Useful Books
- Book Nurturing-Your-Autistic-Young-Person
- What I Want to Talk About: How Autistic Special Interests Shape a Life
- Untypical: How the World Isn’t Built for Autistic People and What We Should All Do About It (Audio Download)
- Girls and Autism: Educational, Family and Personal Perspectives
- The Spectrum Girl's Survival Guide: How to Grow Up Awesome and Autistic
- Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age (Audio Download)
- The Anxiety Toolkit: Strategies for managing your anxiety so you can get on with your life